Archive for June, 2011

My Ten Top Autism Tweets

Saturday, June 25th, 2011

I don’t tweet. Not because of being old-fashioned (my children were happy to instruct me in the ways of tweeting). Not because of accessibility (I’m always attached to a smarter-than-me phone). I just don’t have the time to tweet, or to read them (is there a word for that?)

But… if I did have the time, here are some of my 140-char-or-less thoughts about ASD. My patients have heard many of them. Many times.

1. You’ve got to bring the child into our world, not the other way around.

2. Diets are great, but they have to be practical, safe and demonstrate predicable results.

3. When it comes to autism, there is fact, science and folklore. The Internet is basically folklore.

4. You don’t have to have an affected child to be a good autism doc.

5. Anyone who claims to fix autism without giving you a clear understanding of the facts and time involved is not being accurate.

6. Epidemics in humans are environmental, by definition. We are not fruit flies.

7. ABA best addresses significant behavioral problems. The child must be able to tolerate a physical examination, for example – for their own good.

8. Forget about “PDD-NOS, plus sensory issues, with significant speech delay.” It’s called AUTISM.

9. Every medical diagnosis requires an appropriate and effective workup. ASD is a medical diagnosis.

10. Parents of autistic children are the most patient people that I have ever met. Ever.

Thank you for bringing us your sons and daughters.

Sincerely,

theautismdoctor

Happy Father’s Day from an ASD Child (easy version)

Tuesday, June 14th, 2011

To read the letter “the sensory way” click here

Dear Dad,

I don’t speak much (or at all), so you might not hear me say how much I appreciate all that you do. Fathers and kids are supposed to be outside and playing together on a day as special as this. I can do that! Maybe I’m not playing catch or kicking the soccer ball, but I’m having a good time.

I might not show as much love or affection as other children, so you may not see me trying to get your attention and praise. But, some of my stims are doing exactly that – getting your attention. I know that you are trying to figure me out, so thanks for being patient.

I sense things in a different way from others so the foods that everyone eats at this time may not be OK for me to eat. Even if they were, that Dr. Udell has taken away all of the good stuff! Someday I hope to tell you that I know how difficult it is to prepare a GF/CF barbecue.

Lots of people can be a problem for me, so ball games or crowded parks are not my favorite place. Thanks for understanding my issues, and taking us to the beach or just playing by the house so I won’t have a meltdown.

I don’t make friends very well and neighbors or even relatives increase my anxiety, so there won’t be a busy household on your special day. Thanks for keeping me safe and helping me work things out at my own pace.

Everyone is fussing around you today, so I know that they think that you are special, too. Somewhere, inside, I am just like every other kid who loves their Dad, even if I’m not sure what day it is.

Love you, Dad,

Your sons and daughters

I believe that reading the other way may represent the experience of many ASD patients.

Thanks to all the Dads of autistic children for your endurance and support.

Happy Father’s Day

Sincerely,

Brian D. Udell MD

Happy Father’s Day from an ASD Child

Tuesday, June 14th, 2011

Try to read this all the way through and imagine how difficult it must be for the children:

To read this letter “the regular way” click here

Dear Dad,

I don’t speak much (or at all), so you might not hear me say how much I appreciate all that you do. Fathers and kids are supposed to be outside and playing together on a day as special as this. I can do that! Maybe I’m not playing catch or kicking the soccer ball, but I’m having a good time.

I might not show as much love or affection as other children, so you may not see me trying to get your attention and praise. But, some of my stims are doing exactly that – getting your attention. I know that you are trying to figure me out, so thanks for being patient.

I sense things in a different way from others so the foods that everyone eats at this time may not be OK for me to eat. Even if they were, that Dr. Udell has taken away all of the good stuff! Someday I hope to tell you that I know how difficult it is to prepare a GF/CF barbecue.

Lots of people can be a problem for me, so ball games or crowded parks are not my favorite place. Thanks for understanding my issues, and taking us to the beach or just playing by the house so I won’t have a meltdown.

I don’t make friends very well and neighbors or even relatives increase my anxiety, so there won’t be a busy household on your special day. Thanks for keeping me safe and helping me work things out at my own pace.

Everyone is fussing around you today, so I know that they think that you are special, too. Somewhere, inside, I am just like every other kid who loves their Dad, even if I’m not sure what day it is.

Love you, Dad,

Your sons and daughters

I believe that reading this way may represent the experience of many ASD patients.

Thanks to all the Dads of autistic children for your endurance and support.

Happy Father’s Day

Sincerely,

Brian D. Udell MD

Autism News

Monday, June 13th, 2011

I have only posted a few blogs in the past several weeks, and I am using this post to explain that I will continue to write as much as time will permit. However, there are several reasons for the recent slowdown.

First, the latest articles about yeast were a beast! I spend a good deal of time ensuring the accuracy of my practice and the information that I put into the blog. You wouldn’t believe the amount of information that I had to sift through in order to write a brief and useful guide for parents who try to understand the nutritional aspects of ASD. Or, maybe you would believe the problem – lots of opinions, but little scientific information. As far as fungus in the diet and autism goes, the web is folklore, basically.

The second reason for my blog slog is that we have been working on upgrading the features of this web and The Child Development Center of America web. At my practice website, for example, a patient portal is being added in order to streamline communication and care.

More importantly, however, I want to formally introduce and explain the Newsworthy tab. I scan a great deal of information every day in order to obtain the latest research. Some Newsworthy articles will come from the lay literature (yes, Newsweek can be a good source of information) and most of my interest is in scientific journals and papers. It is not my intent to merely regurgitate what you may find at any ‘Autism News’ website, however. I am trying to pick the papers that have the information that I want, and that I believe my patients and the readers are seeking. That is, truthful research that accurately describes the epidemic. And, when there are articles that are not science, I want to make sure that my opinion is shared.

So, sit back and relax, everything Newsworthy will be uploaded and commented upon RIGHT HERE (well, almost everything, or as much as I can do). Thanks for reading.

Practice Administrator & Mom: Karen’s Advice to Parents

Saturday, June 4th, 2011

 

Karen Vossen

This particular blog won’t teach you anything new about Autism. It won’t tell you how to help your child. It is simply a blog from a Mother of an autistic child who wants you to know that you are not alone.

What is your D-day?

June 28, 2005. That is my “D-day” or my diagnosis day. That is the day my son, Jake, was diagnosed with Autism. Do you know your D-day? If you are a parent of an autistic child, I bet that you do.

I don’t mark it on my calendar or put in my phone. It’s a day, quite frankly, that I wish I could forget. In some ways I have already done that. I don’t remember much after the neurologist confirmed, “Yes, I think your son has autism.” You’d think as a woman, I’d at least remember what I was wearing. But I don’t.

I thought that we were the only couple on the planet whose child was autistic. None of our friends had autistic children. We didn’t have any autistic relatives. I didn’t even know what Autism was until a few days before D-Day, when a pre-school teacher suggested that I look it up on-line. I mean, I had seen the movie Rainman, but come on, that wasn’t my son!

Suddenly, my world was upside down. “WHY ME? I am a good person damn it! I don’t deserve this.” Eventually, I had to tell everyone. Most people thought that Jake would ‘outgrow’ it or they would say, “He’s still so young, boys are always slower than girls.” They were clueless, just like me. If one more well-intentioned person said to me, “God only gives us what we can handle,” I was going to scream. Friends and family try to understand, but, let’s face it; if you don’t live it, you don’t REALLY know it.

“The Joy of Autism”… yeah right.

Next, I read all that I could about autism. I’d put the kids to bed and then search the Internet.  I kept filling in questionnaires to see if the results might be a mistake. Unfortunately, the conclusions were always the same.

One story that stood out in my mind was entitled, The Joy of Autism. It was written by the father of a 10 year-old autistic son. I began reading, hoping to find “the cure”. The son was severely affected. His dad wrote about all the strides his son had made since being diagnosed. After many years, the son finally spoke (only a few words) and he used a mechanical device to communicate. Dad noted milestones such as dressing and potty training. The author told about how all of the years of tending to his son had made him a better person. He claimed that,  in some ways, his son’s disability was a blessing. Did I miss something? I truly thought, “This man is crazy. How could anyone find joy in Autism?” I never thought I would feel that way. I felt so alone.

I am a selfish bitch.

Every day, I sat in the lobby of ‘the therapy place’ and read every book about autism that I could.  Then, I discovered a miracle.  There were other autistic children. And they came here, too. And, they had parents! I started introducing myself to the other parents and found something amazing. They were living my life!!!  Someone told me about a support group – and I went.  It was amazing to me that there were so many people in my neighborhood who had autistic children. Why hadn’t I noticed that before? No one ever talked about it. I was so involved in my own little perfect world of play groups and activities for my kids and family that I never noticed this world of autism.

One day, while waiting at Jake’s therapy session, the door opened. A woman was propping it open with one foot and wheeling in her 8 year-old daughter. I got up to help, but she quickly said “It’s, OK. I’ve got it”. I had only seen them before in passing, but the mom seemed to be in a particularly good mood that day, so I asked, “Why?” She said “It is a great day!  I finally got a winch for my van. It secures my daughter’s wheelchair to the floor so it doesn’t move around while  driving. I have been wanting one for such a long time.” Her daughter not only couldn’t walk; she couldn’t talk, or feed herself, and there was probably permanent brain damage. I congratulated her on the new equipment and left. I didn’t want her to see me cry.  I am a selfish person. If anyone deserved “curing” it should be this child. I thought, “Why had life been so unfair to us all?”

Six years after my D-day.

Now, I am in my home and blogging about Autism. I work for a DAN Dr. and assist hundreds of families who have children on the Spectrum. It’s almost unbelievable. It has taken me nearly all of those 6 years to realize my ‘joys’ of autism. Autism brought me to the school that both my children attend. Had it not been for that, my daughter wouldn’t have her great circle of peers, and I wouldn’t have their parents as my good friends. Autism has made me, my daughter and my husband better people. Previously, we rarely noticed persons with disabilities, let alone have them as companions. Our patience and faith have grown by leaps and bounds. I have found a job that I love. I am lucky because I have an answer to the question, “Why me?” I have the opportunity to help families by assisting in the medical practice AND by being there for them as a parent of an autistic child.

And, yes, I have been part of many ‘D-days’. I wish it weren’t so, but at least I can share my experiences and give families direction.

It doesn’t matter what particular ‘joy’ you find about your affected child.  Think about where you started and where you are now.  Think about all the great people you have met because of Autism and most of all – share your knowledge with others.

 

Yeast Autism Connection 2

Thursday, June 2nd, 2011

Map of World 1490

In 1491, it “made sense” that the world was flat. When sailors strayed too far, they might not return. The science of the day, controlled by the Church, said that the world was flat. Two years later, it was irrefutable that the world was round. My career spans 4 decades of learning and my credentials include one of the earliest papers on intravenous infant nutrition and my recent interview by WebMD regarding nutritional advice. Thus, the information that I provide is based on scientific evidence, not the “it makes sense” logic that is not science.

The Top Ten Things That Don’t Make Sense (to me) About “Yeasty Foods & Diets”

1. “Sugar is the problem”. Simple sugars are immediately absorbed into our bloodstream. Our pancreas senses this and secretes insulin so that the proper cells can efficiently utilize that quick energy source. Think “glucose tolerance test”. The more sugar, the more insulin, the more energy which, if not used, will be stored as fat. Keep ingesting the stuff and a vicious cycle could ensue leading to increased needs for the insulin and viola – obesity, artery disease or possibly diabetes! Anyway, this story has to do with yeast and I do not believe that simple sugars create the yeast problems that I see in our patients.

2. “High fructose corn syrup is the problem.” Glucose. Fructose. Sucrose. There is little evidence that one form of the sugar is worse than another. As I have written in other posts, I am more concerned about the artificial colors and flavors than the actual sugar (as far as hyperactive behaviors go); though weight gain, dental carries, inadequate nutrition, and increased triglyceride levels, which can add to a person’s risk of coronary artery disease (= heart attack) should certainly cause concern. Now, if there is mercury in the stuff, as has been reported, that could be a big problem – but that’s not yeast’s fault.

3. “Specific Carbohydrate Diets will fix the yeast problem.” SCDs have been offered as a means to help bad bacterial overgrowth that may be caused or improved by the use of simple sugars and avoiding refined sugar, grains and starch (complex sugars). SCDs are helpful in a few ASD patients who appear to have a persistent yeast issue, don’t get me wrong. I have heard/read about enough families who have seen remarkable successes with this diet. One parent has told me how relatively ‘simple’ it was to maintain. That would be one. Most moms lament the extra resources and work. Frequently, the diet has 6-9-12 months maximum usage. I’m just reporting my overall observations. Please don’t take offense if your child has improved with this dietary intervention. I just think that such a positive dietary response probably represents more of a diagnostic clue to this patient’s type of autism than a viable intervention to “try out” for the majority of my families.

4. “Yeast in the diet makes the problem worse.” Inactive yeast has no fermenting power as do the live yeasts used in bread making and brewing. The drying process totally inactivates the yeast’s leavening ability. The food preparation and digestion make the yeast just another protein/sugar/amino acid substrate for the body to use as fuel. On the other hand, now that we are actually able to test for Candida Albicans food allergy, plus baker’s and brewer’s yeast, we can identify patients who are actually allergic to such fungi and so eliminate them from the diet. There is a big difference.

5. “Yeast in the diet is like yeast in a person’s intestines.” What the DAN community is concerned about is the yeast that could be growing in a patient’s small or large intestine, anus or skin. I believe that it is this yeast “infection” that is making some of the patients sick and exhibit symptoms such as “fog”, inattention, skin rashes, and sometimes bizarre behaviors. So, when we eat a mushroom, which is a fungus – we don’t grow mushrooms in our intestines.

6. “Natural remedies can be as effective as medicine for a significant yeast problem.” Anti-yeast herbal or ‘natural’ products do not seem to help as much in my practice as in some others. Curcumin, for example, can be quite effective but there is a smell and/or taste that prevents ingestion. Also, and probably more important, is the clinical impression  that Diflucan (an anti-yeast medicine) seems to do more than just stave off yeast growing in our gut. It simply works too quickly for the slow growing yeast’s demise to be the only factor. Dr. William Shaw (Director of Great Plains Laboratory) has told me that many DAN practitioners report similar results, and he asks whether the medicine is changing the neurotransmitters in some manner?

7. “Yeast is OK in our intestines. At least a little.” Who says it’s OK for ASD patients? In my practice, at least, it appears just the opposite. When a patient experiences “die-off” then shows significant improvement in behaviors, fog, and speech and language, it is impressive.

8. “Yeasty foods include vinegar, gluten, all sugars, fruits and yeast.” To me, “yeasty foods” are foods that go undigested. That means there is a substrate – food – for microorganisms to feed upon. Fungi LOVE warm, dark, wet environments. In an unhealthy G-I system which does not properly break down all foods to their component elements to be absorbed in the body, the un-broken down foodstuff is a great medium to grow cooties.

9. “Sacchromyces is a good way to remove yeast from the gut.” This is a fungus. It appears to successfully overtake the Candida (“bad fungus”) from the gut. However, there is little scientific evidence that it’s OK to have Sacchromyces boulardi (“good fungus”) in the human gut either. So, I only resort to this when I feel that other treatments have not been successful.

10. “Nystatin is a like Diflucan for removing fungus from the GI system.” First, nystatin, which is a poorly absorbed anti-fungal medicine, is yucky. It is difficult to get a “correct” dose that works but doesn’t cause diarrhea or abdominal upset. Second, as I noted in #6, Diflucan appears to do some other magic more than just yeast-killing.

What DOES make sense about the yeast issue is interference with autistic patients’ learning and behaviors. In its absence patients do better, and in the presence of yeast (or at least its presumed presence) stims and hyperactive behaviors appear exacerbated. What DOES make sense is that undigested foods, whatever the source, sitting in a warm, wet, dark environment are likely to allow yeast to sporonate and multiply. What DOES make sense is that, in the absence of environmental enemies such as viruses or bacteria, fungi will have a better chance to survive. So, finally, what DOES make sense is that if we stop the insanity of giving antibiotics for everything, if we stop putting antibiotics in our food and water, if we allow non-life threatening viruses to occassionally run their course – we may see less havoc which yeast can wreak on our fragile bodies. If you’ve got a sensible diet – Try it!

Categories Archives Links Contact Us

Brian D. Udell MD
2751 Executive Park Drive
Suite 201
Weston, FL 33331
Office phone – 954-873-8413
Fax – 954-384-2287

Email bdumd@childdev.org
Website http://www.childdev.org

© Copyright theautismdoctor.com 2010.
All Rights Reserved