Having a special child requires more patience, time and love than most people can imagine. With ASD, it’s not just the grandparents who don’t understand, or the neighbors’ kids who taunt, or the schools that don’t seem to have the services, it even extends to the ignorance and insensitivity of doctors and medicine in general.
Parents are told “your kid’s got PDD-NOS – you’re going to need OT, PT, S&L, ABA, ESEs… so you need to go get tested at the CDTC.” The child neurologist makes a diagnosis, but offers little hope and no medical intervention. Allergists, gastroenterologists and dermatologists only consult about their area of concern. Even pediatricians are rarely knowledgeable enough to give advice and counsel. Worse, many physicians warn that you are wasting your time and money if you even consider an alternative treatment. So, families seek information and community on the web.
As a physician taking care of so many patients with autism, I often feel the same lonliness, isolation and even scorn as the parents whom I help. I became prompted to write this when I read an article in this month’s AAP newsletter, which is published by my professional Society, and paid for by the self-serving pharma, formula and other companies who wish to appear official by advertising in this supposedly impartial scientific periodical.
Pseudo-outbreak of pertussis
linked to specimen contamination
That’s the headline of a small story tucked inside the second page of our obscure pediatric newsletter. Ummm… where did this appear in the mainstream media??? I mean, when the outbreak was considered to be due to those irresponsible, horrible parents that won’t vaccinate their kids, it was all over the news.
You know what they found out? The germ was coming from the people at CDC who were trying to grow the specimen. THEY created the problem! It wasn’t a ‘pseudo” anything, because there was NO outbreak. Isn’t this important enough to have appeared on TV? Yo, Anderson, Drs. Gupta & Oz – where were you on this story?
“Staff reported not wearing gloves routinely when collecting specimens or preparing vaccines, which were done in the same rooms.” I’m sorry, I have to comment here; they were testing the “cases” of whooping cough in the same place they were making the pertussis product. “In addition, sinks were not always available in exam rooms, and surfaces were not cleaned regularly with bleach… <the whooping cough germ they were using to make vaccine> was detected on many surfaces, including nurses’ laptops and exam room areas. “
It is not merely the observation that such shoddy practices could take place in our so-called state-of-the-art, highly evolved public health infrastructure that should make the reader less-than-confident that we are all protected and safe from bad cooties. It is not only that there seems to be a disconnect when such a finding comes to light and the general public is not really informed about such a grievous error.
The greatest problem that I have with this information is in the concluding statement, “The investigation and other data prompted the CDC to publish best practices for the use of PCR for pertussis diagnosis.”
That’s it? No one was fired, no managers were reprimanded? There was no retraction put out in the general media, that’s for sure. Who would that help? Then, vaccine makers and testers might be required to have unnecessary scrutiny from possible outside sources who couldn’t really understand the gravity of a real epidemic. Heaven forbid, people might not trust the system.
There are roosters guarding us chickens and explaining their actions using ‘newspeak’. Where are the right people to take notice? That’s why we feel so alone.
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