Archive for the ‘News-Maybe-Worthy’ Category

Acetaminophen And Autism

Sunday, July 10th, 2016
tylenol9

A Tylenol® by any other name; including Xumadol, Paracetamol, Tirol, Calpol, Panadol, etc, etc.

Evidence supporting an another pharmaceutical connection to autism was recently presented in a study entitled, Acetaminophen use in pregnancy and neurodevelopment: attention function and autism spectrum symptoms, which appeared in The International Journal of Epidemiology.

Given our current state of ignorance, support, rejection, and often, polarizing opinions have already surfaced.

The Present Study
The authors concluded, “Prenatal acetaminophen exposure was associated with a greater number of autism spectrum symptoms in males and showed adverse effects on attention-related outcomes for both genders…”

Recent Supporting Evidence
2014: Acetaminophen use during pregnancy, behavioral problems, and hyperkinetic disorders
Conclusion – “Maternal acetaminophen use during pregnancy is associated with a higher risk for HKDs and ADHD-like behaviors in children.”

2014: Associations between Acetaminophen Use during Pregnancy and ADHD Symptoms Measured at Ages 7 and 11 Years
Conclusion – These findings strengthen the contention that acetaminophen exposure in pregnancy increases the risk of ADHD-like behaviors.

2013: Prenatal paracetamol exposure and child neurodevelopment: a sibling-controlled cohort
Conclusion – “Children exposed to long-term use of paracetamol during pregnancy had substantially adverse developmental outcomes at 3 years of age.”

Opposing Opinions
2016: Use of acetaminophen (paracetamol) during pregnancy and the risk of autism spectrum disorder in the offspring.
Summary – “… the empirical data are very limited, but whatever empirical data exist do not support the suggestion that the use of acetaminophen during pregnancy increases the risk of autism in the offspring.”

Dr. James Cusack, research director of Autistica, “…insisted there was “not sufficient evidence” to back the suggestion. “The results presented are preliminary in their nature, and so should not concern families or pregnant women.”

The ‘experts’ say, “Don’t even worry about those studies”
claiming a relationship between Autism and Acetaminophen.
Really?
Where is the proof that it’s SAFE?

Discussion
First available in US in the 1950s, Tylenol Elixir for children became even more popular 30 years later when aspirin was reported as a contributing factor to an often fatal Liver – CNS disorder (Reye’s Syndrome). Interestingly, the authors of a 2007 literature review wrote, “The suggestion of a defined cause-effect relationship between aspirin intake and Reye syndrome in children is not supported by sufficient facts.”

Throughout the globe, there are over 100 names for acetaminophen. Plus, it is an ingredient in hundreds of other over-the-counter remedies. It is widespread and readily available. The increased use of this chemical tracks with the explosion of autism into the 21st century.

The medication can cause liver problems and freely crosses the placenta. There are studies that link pretreatment with Tylenol to address fever associated with childhood inoculations, and an increased risk of ASD. Furthermore, the mechanism of action includes the creation of oxidative stress, which is thought to play a significant role in autism.

Conclusion
What about occasional use? The present research concluded, “These associations seem to be dependent on the frequency of exposure.” However, until further investigations are performed, there could be specific times in pregnancy that are more sensitive than others, regardless of the dose.

A single, relatively uncomplicated question – whether there is an association between Tylenol and ASD – needs to be answered. This is but one example of why numerous other substances in our poisoned environment are so difficult to pin down. And, forget about combinations of substances. Why is the establishment so quick to point out the weakness of the present research, and declare that, “Everything is fine?”

Until more information is collected, conservative advice is warranted. Acetaminophen usage in pregnancy should be placed high on the ‘This Deserves Further Study’ list of important autism associations.

July 4th with Developmentally Challenged Children

Friday, July 1st, 2016

July4While the rest of the country eagerly awaits an exciting and fun-filled day, there are some families who will wonder how to get through the celebration. Here are the top 10 reasons why this can be so challenging.

July4 littleThe trip to see the fireworks may present the first hurdle. The closer the venue is to home, the better. There will be less echolalia, as in “Get there?Get there?” And, if you need to return early, it’s a shorter journey.

July4 little otherProblems at The Beach, The Lake, The Mountain, etc. Dangers abound. Children with sensory issues do not necessarily perceive the experience as pleasurable; and families may be hard pressed to convince a reluctant child otherwise.

July4 littleSleep. Even if you can somehow avoid the hoopla, the neighborhood is awash in sights and sounds that can keep everybody going well into the night.

July4 little otherDangerous smoke bombs, sparklers, and other explosive devices. Parents need to remain constantly vigilant, lest their affected child jumps in to join in the ‘fun’.

July4 littleCrowds. Relatives, friends, neighbors, and strangers are present in sometimes overwhelming numbers. Then, there are pets, clowns, and other terrifying distractions.

July4 little otherParades. Waiting in line and jockeying to improve visibility of revelry that the children may not understand – or even look at – sometimes seems pointless and counterproductive.

July4 littleThe heat, mosquitoes, and outdoor environment can create more than the expected amount of whining, complaints, and rashes.

July4 little otherOff schedule activities. Often, children get used to any type of routine – even in the summertime. This becomes another day to explain why “We can’t do… this or that.”

July4 littleThe food. Many parents have to choose between enforcing a restricted diet, or letting a child ‘cheat’, perhaps leading to aggressive behaviors in the ensuing hours and days.

July4 little otherThe Fireworks! Really loud noises and flashing lights that may terrify even neurotypical youngsters. Not fun for all.

Our national holiday is supposed to be a joyous family affair, and is often remembered fondly. Parents hope to pass the experience on to the next generation. In certain circumstances, the atypical child presents novel tribulations – including more than a few that couldn’t have even been imagined.

A Better Approach to Autism and ADHD

Sunday, June 26th, 2016

When faced with the diagnosis of autism or moderate-to-severe attention deficit/hyperactivity disorder, parents have limited choices. Some may be financially out-of-reach, others could be unproven or even risky. It appears that the available options fall into these categories:

question-mark littleNot to treat
Honestly, when the major concern is ADHD in very young patients, this could be the best alternative. Children may simply need time to gain skills, such as self-control and socialization, that come with maturity. Furthermore, if gains can be achieved by holding the child back a grade, or ‘settling’ for a non-gifted classroom, medical intervention may be overkill.

However, if behavior includes repetitive movements and restricted interests, speech delay or social isolation, the sooner that intervention is begun, the better – with or without a formal diagnosis.

The traditional disciplines, including Occupational, Physical, Speech, and Behavioral Therapies, are the proven place to start.

On the medical front, two major approaches have emerged. The protocols are pictured in the diagram below.

Bomb©theautismdoctor

arrow small downTraditional approach – Top Down
Conventional medical treatment involves dropping a pharmaceutical bomb, to see who ‘gets better’ when the dust settles. Parents should be particularly concerned when the neurologist or psychiatrist prescribes potent central nervous system drugs for youngsters under the age of 5.

“What is the specific diagnosis? Has an adequate workup been performed? What are the risks? Won’t these drugs affect my developing toddler’s brain? How long will my child have to take this stuff?” are all valid questions. And, if the medication is unsuccessful, there’s frequently a switch to another one, in no particular scientifically justifiable order.

When the right drug is given to the right patient, it is truly a wonderful thing. However, the success rate, especially with the initial choice, is low. The risks include alterations in sleep, linear growth, appetite and weight change, and increasing negative behaviors. None claim to induce speech, sociability or maturity.

arrow small upModern approach – Bottom up
The biomedical perspective addresses the multiple individual signs and symptoms that affect people on the spectrum. After a thorough history and physical examination, laboratory evaluation of the patient helps identify specific areas that need medical attention.  Then, the safest interventions that are most likely to address aggression, low tone or ‘fog’ are chosen. Often, that may involve improving gastro-intestinal health or nutritional deficiencies.

Enabling mechanisms that unlock a human’s (?) innate ability to speak becomes paramount. Understanding the response to treatment that is displayed by certain behaviors; including aggression, focus, attention, and sleep are tricky, (?) necessary, (?side-) effects of the treatment regime itself.

Discussion
It takes more of the supplements at the bottom of the diagram to achieve apparent symptomatic relief than those dropped from above. Probiotics are ingested to improve the micro-biome and bowel function, proteins enhance mitochondrial efficiency to enable better motor (and oral-motor) functioning, and dietary changes lift the veil. About such a protocol, parents often say, “They got things started.”

As prescriptions ascend toward nuclear intervention, the risks and side effects become more serious, while the improvements are only as observable as the objective of desired behaviors. So, if compliance is the goal, but fails to assist with speech, the parent may be missing a key developmental opportunity.

Conclusion
New parents are forced to make so many critical decisions. Among the bravest are those who seek answers for the tidal wave of Spectrum youngsters. Often, they believe that there is nowhere to turn.

That has forced an increasing number of families to become more knowledgeable than their doctor about autism. This diagram can be helpful for families and health care professionals as they formulate decisions for children with developmental diagnoses.

Happy Fathers Day – An Autism Perspective

Sunday, June 19th, 2016

Dear Dad,

I don’t speak much (or at all), so you might not hear me say how much I appreciate all that you do. Fathers and kids are supposed to be outside and playing together on a day as special as this. I can do that! Maybe I’m not playing catch or kicking the soccer ball, but I’m having a good time.

I might not show as much love or affection as other children, so you may not see me trying to get your attention and praise. But, some of my stims are doing exactly that – getting your attention. I know that you are trying to figure me out, so thanks for being patient.

I sense things in a different way from others so the foods that everyone eats at this time may not be OK for me to eat. Even if they were, that Dr. Udell has taken away all of the good stuff! Someday I hope to tell you that I know how difficult it is to prepare a GF/CF barbecue.

Lots of people can be a problem for me, so ball games or crowded parks are not my favorite place. Thanks for understanding my issues, and taking us to the beach or just playing by the house so I won’t have a meltdown.

I don’t make friends very well and neighbors or even relatives increase my anxiety, so there won’t be a busy household on your special day. Thanks for keeping me safe and helping me work things out at my own pace.

Everyone is fussing around you today, so I know that they think that you are special, too. Somewhere, inside, I am just like every other kid who loves their Dad, even if I’m not sure what day it is.

Love you, Dad,
Your sons and daughters

Thanks to all the Dads of autistic children for your endurance and support.

Happy Father’s Day

Sincerely,
Brian D. Udell MD

 

Practicing Autism Treatment

Sunday, June 12th, 2016

The identification of supplements, medications, or protocols that demonstrate safety and usefulness in each individual patient of a certain age and sex, who exhibits a specific set of signs and symptoms, is certainly the most daunting part of this new practice of Pediatric Special Needs medicine.

This week, we received some great news about two of our patients with significant speech delay. Both have been has been getting treatment at The Child Development Center for ~18-24 months, experiencing significant speech apraxia that has been resolving only very slowly, in spite of the usual alternative protocols.

 5 year-old Harry:
Hello Dr. Udell,
I met Billy’s mom, who also sees you. Also by chance, ironically she goes to the same speech therapy place as Harry. We started talking and she suggested I put Harry on a special diet. I have amazing news to report. I am not sure if it is coincidence, but I put Harry on a very strict Gluten free/Casein free/Soy free/Sugar free diet this past Saturday (6/4) and on 6/7 he started talking!!!! He is mostly repeating when I prompt him, most of the language is prompted and a lot of it is not completely clear, you can make out what he is saying though. Very similar to when a child first starts talking. He has said in excess of 70 new words in the past 2 days, not including words he is repeating!!!! I am so excited. I am not sure if you can review the supplements he is taking and let me know if you want me to change anything?? Do you want me to give more B12 shots?? He is currently taking them twice a week. Now that he is “talking” I am not sure if we should alter anything and wanted your opinion/advice. I am going to stop in shortly to pick up more glutathione so please let me know… His bowel movements are improving/changing as well. Please let me know what you think and I will bring him with me next week when I pick up more supplements and have him say “hi” to you…. literally!!!!

 Thank you so much Dr. Udell!!!
Dr. U
What a great response… honestly, it’s hard to know why, ’cause he didn’t show a significant IgG elevation against those foods..
It’s peculiar that for some, an SCD diet, GAPS diet, or other specific protocol, helps so much and others not at all.
I would just continue whatever you are doing right now without any changes.
Thanks so much for this information.
As long as you do not mind, I plan on using this as a blog – I will, of course, leave the names anonymous… but it would help so many others re-double their efforts.

Mom
Absolutely, and you can use our names, I don’t mind! (anonymity anyway). I am all for helping as many people as I can with whatever information necessary! I am so grateful to you Dr. Udell for all you have helped us with, I know its still a long road but I am more hopeful then ever. Let me know when you would like to see him next. I will see you sometime next week when I stop in to pick u more GSH…..

 7 year-old Bobby:
Hello wanted to share great news. Bobby scored above average in Reading Comprehension and average in Math. He was promoted to first grade with no issues. Next year he will be in a  Gen Ed classroom for 90 minutes, 5 days a week. He will also share specials and events with his Gen Ed class. 

The teachers wrote, “In the past year, Bobby has come such a long way! Beyond our expectations. God is good. First grade, here we come!!!!”
We would like to thank Dr Udell and his wonderful caring team!  We feel blessed!
Dr. U
What great news… Thanks to all your persistence and hard work, as well.
Really appreciate this update.
Regards,

Discussion
Autism recovery is a marathon, not a sprint. Parents are sometimes quite frustrated when they observe only a fraction of the improvement that they had expected, after only 3 or 4 visits over 6 or 9 months.

Those who discontinue modern alternative autism treatments, delivered by a trained, experienced medical practitioner, are relinquishing valuable time and opportunities for improvement.

Conclusion
The time that it takes to demonstrate improvement varies greatly from patient to patient. Often, the real miracles are the ones that percolate, not the occasional ‘great responder’ who gets better after one or two treatments (as seen on YouTube, of course).

When asked about which intervention generated the most improvement, many parents declare, “Im not sure what made my child better. It was a combination of the doctor and all of the various therapies.”

As long as medical intervention is affordable, safe, and effective, being part of the team that leads to improvement provides more than enough encouragement to continue the fight.

The Importance of Genetic Testing for Autism

Sunday, June 5th, 2016

Although ASD patients share common signs, such as speech apraxia, repetitive behaviors, and social isolation, the wide range of differences in their personalities and abilities demands exploration, as well. The answers will require a better understanding of our genes, which are the most basic building blocks of structure, function, and subsequent behaviors.

Copy Number Variation (CNV)
It’s 2016. The human genome has been mapped, and is even available online. During fetal early infant development, as cells divide and grow, tiny pieces of a chromosome may be missing, duplicated, inverted or transposed.

Genes exist on chromosomes, so variations in the ‘normal’ pattern, could certainly explain alterations in development. Abnormalities help identify susceptible individuals in our toxic environment.

A ‘chromosomal microarray’ test has frequently been part of the work-up for autism, as doctors searched for ‘Fragile X’ syndrome, which had been believed to be the most common genetic cause. That is old-fashioned thinking, and problems with the other 45 chromosomes are ubiquitous. If your child has had this ‘lab’ in the past, have it reviewed by a competent, modern genetic expert. If the child hasn’t had one, it is the best initial evaluation, and much more likely to yield useful information than an MRI or EEG.

GeneGene Testing
This represents an analysis of sections on chromosomes that code for specific products. There now exists the technology to identify many possible gene candidates for autism, with more appearing every year. Results serve as state-of-the-art information to identify certain patients who have significant deviations from typical development.

This examination can be particularly important with the 20% – to – 60+% of cases of ASD associated with some type of convulsion. Patients are often diagnosed with idiopathic epilepsy, which is merely doctor-speak for seizures of unknown origin.

The high cost of such laboratory examinations precludes routine use. However, companies are aware of such limitations, and seem to do a good job of assisting families overcome this obstacle, especially in those patients who demonstrate extreme problems.

MTHFRSingle Nucleotide Polymorphisms (SNPs or ‘snips’)
At an even more granular level are regional changes within genes. Such chemical variations are common in the population and can explain individual differences. Even a single alteration in the composition of DNA may explain why one person is able to detoxify while another is not. It even becomes more complicated as we examine how changes in one area affect expression in another region.

A common example in autism is the variation that occurs in the MTHFR genes that code for the enzyme that activates folic acid (to tetra-hydro-methyl-folate). This is one of the few useful ASD findings from the popular test, 23&me.

Discussion – What good is this information?
Even today, results can detect situations in which potential treatments and avoidance of unnecessary pursuits are elucidated. The polarizing questions of whether/when/who/which vaccinations could effect the incidence of autism might even be more clearly understood, from this point of view.

The additional knowledge from such testing yields more information about future development, including risks of other conditions, such as thyroid, heart disease or cancer.

In extreme cases, the information may help guide decisions about future offspring or screening of other family members.

Importantly, the lack of a measurable abnormality may motivate a family to attempt conventional and alternative treatments with even more vigor.

Conclusions
We cannot let the insurance companies slide on this one. They are the ones who stand to save the most; although at present they see no tangible reduction, because they aren’t adequately paying for necessary services in the first place.

Rather than give up hope, such additional information should provide even more incentive to explore treatment for ASD patients.

Our better understanding will lead to more targeted and therefore effective protocols for this modern epidemic.

Folate Issues and Autism

Monday, May 30th, 2016
popeye

Highest level in food is spinach, but multivitamins and Ready-to-Eat cereals represent greatest intake.

Recent media attention regarding an association between supplemental folate (= folic acid) and the incidence of ASD has stimulated a fair amount of interest, with questions by patients, professionals, and acquaintances.

Findings presented this month by Johns Hopkins’ researchers showed that high levels of the vitamin increased the risk of autism, as did an excess of B12; and the combination increased the chances even more.

Folate
Highly processed foods are stripped of many nutrients, including folate. Additionally, antacid preparations decrease the absorption of many B vitamins.

Folate needs to be supplied in our diet to make and repair DNA, in order to promote cell division and growth, and to produce healthy red blood cells and prevent anemia. Symptoms of folate deficiency include weakness, nerve damage, confusion, cognitive deficits, headaches, mental depression, sore or swollen tongue, peptic or mouth ulcers, heart palpitations, irritability, and behavioral disorders.

First reported in the 1990’s, women who took daily supplementation around the time of conception and throughout pregnancy with a small amount (< 1/2 mg.) of folate experienced a decreased rate of central nervous system birth defects and developmental problems (review), including ASD .

Additional issues
Over 10 years ago, low folate levels in the cerebrospinal fluid were reported as a cause of autism, and there was a positive response to treatment with the active form of the vitamin.
Shortly thereafter, a proposed mechanism and discovery of antibodies against folic acid, especially in the CNS, were similarly implicated as a cause of developmental delay.
Plus, genetic alterations in the pathway leading to the active form of folate have been associated with an increased incidence of autism, as well.

Conclusion
Clearly, the addition of folate has been a major factor in decreasing the incidence of severe birth defects, such as spina bifida (opening in the spine), meningomyelocele (protruding sac), and hydrocephalus (water on the brain).

This latest study raises questions regarding ‘too much of a good thing’. Considering that ASD has reached epidemic numbers, it is time for doctors to begin screening women for folate and B12 levels, before and during pregnancy.

Kids on the Calendar Year Cusp

Sunday, May 22nd, 2016

May is a key month for parents, administrators, teachers, pediatricians, and therapists to confer about whether Junior should start in PreK, or move on to Kindergarten. Which child should repeat 1st grade? Is the youngster ready for VPK? How about Middle school? What about those children whose birthdays fall between the cracks?

Having watched infants grow up for the past forty years, observing thousands of children who have developmental challenges, and  been part of raising two successful offspring of my own, I have formulated some questions that parents can use to assess school readiness.

As you consider the answers to these questions, you may see a pattern that helps you lean one way or the other to make the most successful choice.

  1. Maturity. I’m not talking about academics or IQ. Does your child play with other children of the same age appropriately? When a stranger enters the room, is the toddler likely to cry or run away? Can you leave the room without a meltdown?
  2. Compliance. Some youngsters at The Child Development Center have an incredible memory, are able to assemble complicated puzzles, and enjoy providing details about dinosaurs, or trains, for example. However, when the adult says, “Everyone in circle time,” they resist. The child who requires multiple prompts will do better with a reduced need for such a requirement; learn in a appropriate classroom setting with younger kids or a smaller teacher/student ratio.
  3. Self-control. As toddlers progress, tantrums should become less frequent, last for shorter periods, not include violence (against self or others), and become less dramatic. Parents often display some denial about this issue. “The teacher made him do this,” or, “Another kid took his favorite toy.” It’s the child response to that behavior that should be considered in order to guide the family to the appropriate setting.
  4. Abilities. I ofter hear the comment, “I know he can do <some given task> if you wants to!” The ability to perform, and the resulting behaviors – even when a task is non-preferred – is paramount. Ask yourself if the gross and fine motor skills that are expected in the next grade are appropriate to your child’s abilities. Then, choose the grade, school, setting, and available resources to get the child up to speed. Their ability to succeed has a great deal to do with future self esteem.
  5. Listen to the professionals who evaluate your child, but be aware of each one’s priorities. Administrators desire a smooth semester, teachers want children who listen, therapists often like to predict level of appropriate function. Parents know their children’s capabilities the best.
  6. Child’s size and sex. The smaller child who has all of the above capabilities will usually find a way to fit in. Indeed, the other students usually include, and even protect. But a child who is too large for a given grade may become a bully, or even be bullied, if they are not able to keep up. Plus, no doubt about it, girls are more advanced than boys.

Conclusion
This advice not only pertains to decisions concerning those who are developmentally delayed and challenged, but neurotypical children, as well. Especially for those whose birthdays put them ‘on the cusp’ between grades, considering such issues and responding appropriately can be even more important than academic concerns.

Medical Academy of Pediatric Special Needs 2016 Spring Conference

Sunday, May 1st, 2016

Practitioners, such as myself, find that it is necessary to attend the bi-annual Medical Academy of Pediatric Special Needs conference for two important reasons. First, to listen to experts from all over the world present their knowledge and latest research. Second, to network with, and learn from, other like-minded practitioners.

What I Liked Best
This year, I chose the ADHD path. The workups that were presented tended to be somewhat complex, and perhaps unattainable for many patients. The bottom line was to get a medical evaluation. The differential diagnosis ranges from thyroid to PANDAS. Mostly all agreed that stimulant and psychotropic meds should not be the first line in treatment. One professor spent some time questioning the diagnosis, itself, and how the modern world has contributed to the epidemic.

What I Liked Least
Traveling all the way to Costa Mesa, CA. Course work is 8 hours per day, so no time for Disneyland, etc.

This Year’s Major Focus
Mitochondrial function continued to play a big role in the presentations. The advanced courses involved lots of methylation, detoxification, and energy production diagrams. The newest twist has been the addition of genetic testing to better determine the cause(s) of inadequately functioning biologic pathways. Single nucleotide polymorphisms (SNPs) and ‘epigenetics’ were the buzzwords – how individual genes interact with the environment and within the individual leading to dysfunction and downstream signs and symptoms.

Topics That Were Discussed in Passing
Microarray genetic testing, covering multiple genes, did not play a big part in this year’s talks. Discussions about childhood immunizations underlie a great deal of the members’ conversations; specifically the lack of solid scientific evidence for safety in high risk populations. Attendees are not against vaccinations, by the way. Lyme disease was discussed in general, and as that inflammatory process relates to other infectious-metabolic conditions.

Subjects Not Formally Presented
GcMAF and nagalase levels. Some patients have indicated that a useful, safe supply may become available, so that will help determine future use. As well, chlorine dioxide, hyperbaric oxygen treatment, helminths, medical marijuana, and stem cell therapy were not offered by this year’s presenters.

Conclusion
It is disappointing to return from such conferences without that ‘magic bullet’. Just standing around, listening to Sid Baker speak about how he got interested in autism, or asking him how the ‘ion cleaning’ footpath worked, is worth the price of admission, however. This science started with Dr. Baker, and he continues to be an inquisitive, gentle force for hope, 40 years later.

In the absence of a sufficient population of scientists who are willing and available to address this modern epidemic of childhood developmental problems, this meeting stands as a bastion against the current state of ignorance.

The Autism Diet

Sunday, April 24th, 2016

There are specialty diets for just about every situation, including specific medical conditions. They developed as humans evolved and discovered nourishment that promoted longer, healthier lives.

Some address a particular population; the Feingold diet could be a godsend for ADHD parents. There are plenty of cancer treatment regimens. Paleo is popular. How long did cave men live, about 30 years? Copious cholesterol lowering protocols. And just plain diet diets for people to lose weight. They tend to be trendy like the Coffee Diet or The South Beach Diet.

The Autism Diet(s)
There isn’t really ONE diet that has been shown to work for all, and there are patients who do not respond to any nutritional alteration.
The variety includes:
Gluten Free / Casein Free Diet (GF/CF) – is one of the most popular and often successful. Parents frequently report that eye contact improves, the fog lifts, and some toddlers begin to speak.

Specific Carbohydrate Diet (SCD) – has many success stories. This fairly restrictive protocol makes it difficult to sustain, even for parents who see improvement.

Gut and Psychology Syndrome Diet (GAPS) – an offshoot of SCD. As in other therapies, the aim is detoxification and reduction of inflammation, leading to a abatement of signs and symptoms.

Dr. Udell’s Child Development Center Diet – Blood and urine testing is done first, looking for 1) a significant IgG antibody response to 90+ foods, and 2) the production of morphine from incomplete digestion of gluten and / or casein (leaky gut). Identification of offending fare is explained to the family, which often leads to a successful appropriate dietary intervention.

The Evidence
The diagnosis of ASD is imprecise, confounding the evaluation of any treatment modality. Lack of biomedical markers to identify patients’ level of involvement and response to change represents another significant challenge to the ‘evidence-based-medicine’ crowd.

Solid scientific scrutiny is lacking. However, there have been lots of coincidences where children improve. At least, the child’s stooling patterns may normalize, or toilet training becomes more successful. What’s the harm?

Discussion
There isn’t a great deal of evidence to support the notion that ingesting large amounts of Monsanto’s Round-Up could hurt us, but it is probably not a great idea. There are antibiotics in our food – proven to cause harm –  and the government has failed to respond.

It’s not proof that families seek, it’s change in their child. When a parent says that “After we started the diet, he seemed to wake up and words started coming,” anyone would stop and take note. To the conventional medical community, that is just another nut who probably doesn’t believe in vaccinations.

The criticism that such diets are nutritionally insufficient is spurious. Accurate documentation of somatic growth, plus pre- and post- laboratory testing confirms sufficiency. For those doctors who seem so concerned about this issue, why aren’t you already checking the nutritional status of your picky eaters?

Conclusions
Compliance is paramount for restricted diets to really work, so family resources and the patients’ age need to be considered when the professional recommends. 7+ year-olds (especially male) tend to cheat, lie and steal the yummier, forbidden fare. Likewise, preparing separate meals for a family of 6 can present a major obstacle.

Improvements are generally incremental; so diets might take time, perhaps months, and may need to be kept up for years. Children with ASD are usually sensory diners in the first place, so change is challenging.

Even in the absence of large, perceptible improvements, your healthier child can respond much more efficiently to the other therapies that assist in the journey towards recovery.

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Brian D. Udell MD
6974 Griffin Road
Davie
FL 33314
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Email bdumd@childdev.org
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