Archive for the ‘News-Maybe-Worthy’ Category

Going Beyond Biomedical ADHD Treatments

Sunday, November 29th, 2015

Message from Mobile Site:
11.29.2015 “Dr. Udell, my six year old grandson has autism. He was diagnosed right after his 2nd Birthday. He is in a special needs kindergarten class and has speech, occupational, and physical therapy regularly. He is non verbal. For the last week he has had some terrible meltdowns that last almost all day. We have tried everything. He is on rispiridone and guanficin. He kicks screams cries and had multiple bruises on his arms from this. His pediatrician told my daughter to take him to the er and have him put into an in patient facility to be seen by a psychologist. Putting him in a “home” is not an option!!! We live in <<deleted>> and cannot find anyone to help my precious grandson…”

November seems to bring unusually dramatic challenges to the more developmentally neuro-diverse. It is a most likely time for caregivers and teachers to complain about lack of focus and attention, fidgeting, daydreaming, easy distractibility, opposition, negative and/or aggressive behaviors.

Here are some of the questions, posed to families at The Child Development Center, which readers may find useful (or not).

Has anything changed in the family?
Fitting in to a more rigorous schedule is quite disruptive to the repetitive-behaviors-restricted-interest (incorrectly referred to as OCD) crowd, especially if there have been changes in family dynamics and living situations. Obviously, life happens, and there is little that can be done. It takes love, time, patience, ABA, other therapies, and a medical evaluation, to determine the best next step.
Treatment with stimulant or anti-anxiety medication should be the last, not first, remedy. Pursuing a less chemical route is helpful because the parent can feel that they have left no reasonable ‘stone unturned’. Moreover, if / when medication is required, dosage may be more manageable.

What has changed at school?
Pre-K to K, K to 1st, 2nd and 6th grade, seem to require the most maturational skills. Large gaps in socialization, and / or unusual behaviors will set that child apart. The ability of the intelligent youngster to perceive their shortcomings can be even more frustrating, leading to a downward spiral in cooperation.
Difficulties include out-of-the-ordinary problems with homework, digital devices, getting to sleep, sleeping, staying asleep, (not) getting ready in the morning, not caring, listening or following directions, and / or poor grades and aggression at school.
If the parent of a child who is older than ~6 years uses those behaviors as measuring sticks, it could be worthwhile to speak with a qualified practitioner about ‘doing a workup‘ and prescribing meds.

Has ‘The DIET’ has been slipping?
Strangely, the customary first step when observing a toddler’s improvement is related to a change in diet, yet it is one of the last things that families think of when things are unravelling. Parents will frequently find an increase in cooperation and concentration by merely re-starting a previously successful one, or giving a trial to The Feingold Diet (‘s opinion notwithstanding).
Also, think YEAST. If the child responded previously to anti-fungal intervention, perhaps it is worth giving that another try. It’s safer/more useful/less addictive/and less expensive than Risperdone or Adderall.

Any Recent Illness?
It takes more time for a child with immune system issues, such as ASD and perhaps ADHD, to recover from a cold, ear or sinus infection. They usually receive an antibiotic or two, maybe steroids, and lots of tylenol. That seems to be sure to take the clock back, a bit, on optimal health. Strong probiotics can help address that deficiency.
A more in-depth examination of the child’s constitutional state may reveal simple, safe and useful supplements, or milder medications to improve mitochondrial functioning.

Get Sleep Under Control.
Nothing can be more effective for ameliorating the signs and symptoms that we call ADHD than a good night’s sleep, every night. Don’t forget about the more natural sensory improvements that may come from massage, warm baths, or essential oils.
Melatonin is useful to decrease sleep latency (the time it takes to fall asleep) though it may not hold throughout the night. Occasionally, 5-hydroxy-tryptophan may lengthen the rest. Sometimes, it may even be necessary to add an antihistamine, such as Benadryl. It is less risky/harmful/expensive than a drug, such as clonidine.

There are definitely families who have found that the best and most lasting improvement has been due to a (some combination of) pharmaceutical preparation(s). Indeed, medications seem to help with school in non-ADHD patients, as well.

Alternatively, as experienced by the family in this email, many parents have been frustrated by the medications, because the child became too ‘stoned’ or more combative.

Socialization will enable maturation to turn on self-control. It’s that switch that no one, including the child, seems to understand. “To medicate or not?” is a decision between the parents, the doctor, and perhaps, the child as well, and should not be the school’s decision, based solely on compliance.

Finally, our response to email requests, such as the one that was presented, is to recommend a local practitioner, or to ask the family to undertake at least one visit to sunny South Florida, so the child can be properly assessed.

Some Thoughts on Alternative Medical Alternatives to Autism

Sunday, November 22nd, 2015

Dr. Udell & Vicki Martin RN

This month’s Autism Society of Broward Speaker Series featured autism expert, Ms. Vicki Martin, who gave an interesting and thorough discussion assessing the medical causes of behavior in ASD, and my talk covering some of the latest biomedical treatments for autism.

Purpose – Improve our Understanding of the Range of Treatment Possibilities
Doctors get questions about these more-than-off-label treatments quite often, so it’s necessary to be current about the literature in order to give a learned response. It’s like homework.
I have an opportunity to give something back to The Autism Society of Broward. It has been my pleasure to have served on this Board for over 6 years. This not-for-profit (and, trust me, we have very few $) organization brings services, such as yoga, sensory-friendly movies, and golfing, etc., to the family level.
Public speaking is always a networking opportunity. There are parents who may not know about The Child Development Center of America and how simple protocols may improve outcomes, especially when they are combined with the traditional therapies. Attendees ask questions and learn about our medical practice.
It’s fun to discuss these topics, and more interesting than reviewing epidemiological data that questions whether autism is an epidemic.

Topics of Discussion
These were not necessarily chosen because they are truly the most recent or popular, but mostly because they have been hyped a great deal, lately, by social and other media.

Improvements have only been accurately documented, so far, in ASD patients with seizures. Any other use of the product at this time is purely trial-and-error, and the safety of hemp oil extract safety in children has yet to be proven. To the extent that patients may be able to take equivalent dosing, more information will emerge. The myriad of patients who try it, however, complicates evaluation about efficacy.

Helminth Therapy
While this unusual treatment of administering live organisms to successfully restore-reset immune function has been documented in adults with specific conditions, as concluded in a recent review, “Studies are neededto move helminth-related interventions that show promise in animals, and in phase 1 and 2 studies in human beings, into the therapeutic development pipeline.”

Chlorine Dioxide (CD)
Following up on that ‘worms or elimination of worms?’ question was a discussion about Chlorine Dioxide (CD) treatment. I ain’t sayin’ that it cannot/does not work in some individuals, but there are problems.
1. The science is weak and contradictory. There is no supporting research for terms, such as “Parasitological Vaccinosis.”
2. The main proponents, so far, are, the mother of an affected child, and scientist with questionable credentials.
3. Treatment can be risky.
4. Treatment involves a fair amount of resources; including frequent administration (every hour, sometimes), adjustment of dose, and which specific sites on the body to administer a dose (systemic, eyes, ears, rectum, etc.).

This peptide, which is produced in the brain, has been called the ‘love hormone’, and has been shown to be deficient in some patients with ASD. Animal models have demonstrated improvement, though humans haven’t responded the same way.

The most recent prospective, controlled, double-blind crossover study that involved 31 patients, demonstrated improvement. This has not necessarily been the experience at The Child Development Center of America, where it has been used for over 4 years, yet only a handful of parents continue to administer the product.

Transcranial Magnetic Stimulation
This type of mechanical device has been used for over a decade outside of the US, but has recently received FDA approval as a device for “major depression in adults who failed to improve on medication.” This is an expensive treatment option, in the range of $6,000 – $12,000 or more, and requires daily 1/2 hour treatments.
Adverse effects are listed as fainting, possible seizures, pain or discomfort, mania, changes in cognition, and transient hearing  and memory loss.

A recent review stated, “Though preliminary data suggests promise, there is simply not enough evidence
yet to conclusively support the clinical widespread use of TMS in ASD,
neither diagnostically nor therapeutically.”

Essential Oils
There is a paucity of literature to support the use of these products for patients who exhibit signs and symptoms consistent with ASD. On the other hand, they are relatively safe, have been around since the beginning of civilization, and do not cost a great deal to try. Furthermore, there are many studies demonstrating improvement in processing with occupational therapy and other ‘sensory diets’.

As in many of the other treatments, this has demonstrated the least improvement in our most apraxic and/or disruptive individuals.

Present medical therapies are woefully inadequate.
Many treatment options have been offered, but few have undergone sound scientific scrutiny.
Parents, desperate to help their non-typically developing child will be tempted to pursue less-than-helpful, less-than-safe protocols.
For the lesser affected patients, many forms of treatment will help.
For the most affected patients, such protocols offer only spotty improvements.
More research is needed. Physicians, who are in the best position to understand the complicated science, must understand the variety of presentations of autism and the myriad of treatment options in order to give families the best advice.

Doctors Failing to Understand Autism

Sunday, November 15th, 2015

When faced with the unknown or uncertain, physicians will often rely on language that, while sounding scientific and medical, just restates the obvious or says nothing helpful at all.

“I’m not aware of any literature on that topic.” Does that mean that the clinician has read everything and there isn’t any, or is the doctor displaying ignorance? A better answer would be, “Let me read about that and I will get back to you.”

“I don’t want to give you a diagnosis at this time.” It’s not up to the physician to decide. At least,  there could be a presentation of possible diagnoses, with the statement about a workup and interventions that the parent can initiate.

“It’s eczema. I’ll prescribe a steroid cream.” What is causing the skin rash? And, steroids will temporarily clear up any skin condition.

A 3-year-old wanders in circles and does not play with other children. “It looks like your child has developmental delay.” Stating the patently obvious is a frequent technique to deflect the physician’s lack of knowledge. The oncologist wouldn’t just say, “It’s a lump.”

“It’s not speech apraxia.” If a toddler wants to communicate and cannot say any intelligible words, that IS the name for that symptom. The converse situation occurs when the professional says that child has autism AND speech apraxia. It’s autism.

“I’d like you to come back in 6 months to see how the child is doing.” If that is the only reason that the doctor has for your return, he should be paying YOU for the visit.

“It’s not autism, I’d say more like PDD-NOS (pervasive developmental delay – not otherwise specified).” The DSM 5.0 has been published. The medical establishment has spoken. If a child exhibits repetitive or unusual behaviors and has communication delay, it’s Autism Spectrum Disorder.

“Those special diets are risky and can lead to nutritional deficiencies.” How about checking nutritional status with some appropriate lab testing? Better, check is as part of the initial workup, especially in picky eaters.

“He’s a boy… You speak two languages… She’s spoiled… Your grandfather was that way, etc.” We are in the midst of an epidemic. The child should be thoroughly evaluated for ASD.

“Studies have not shown significant results.” That depends on what research the practitioner chooses to read and believe. And, whether a treatment is worthwhile is best determined from the parents’ point-of-view.

“We can give medication to get rid of those ‘stims’.” One, repetitive behaviors are often communication, so reprimands may cause even more frustration. Two, those drugs are potent and have serious side effects.

“We can give medication for that anxiety.” One, nervousness is frequently appropriate. The affected child is concerned about not having the skills to join the group. Simply depressing the child’s response is not necessarily a good thing. Two, those drugs are potent and have serious side effects.

“We can give… Miralax for constipation… Zantac for refluxantibiotics for everything.” How about a thorough evaluation of why?

“It’s not anything to be concerned about.” The number one lesson that any pediatrician should learn is, “Listen to your mother(s)!” Worrying is part of their job. The child’s physician should perform an appropriate evaluation.

“Those ‘autism doctors’ are just quacks who will waste your time and money.” The parents can see progress for themselves. Families will continue to search for answers when traditional therapies alone do not seem sufficient.

The parents of today’s children who show signs and symptoms consistent with the epidemic of ASD are often more well-read than the doctor. These questions should spark interest on the professional’s part to offer more than lip-service to such a serious situation.

Lyme Disease and the Autism Spectrum

Sunday, October 25th, 2015

A disease described forty years ago due to a cluster of patients who appeared in the vicinity of Lyme, CT, has to be considered among the list of differential diagnoses when pediatric patients present with unusual developmental and other complaints.

Included on that list are PANDAS, specific neurologic disorders (e.g. seizures and cerebral palsy), chromosomal anomalies, mitochondrial disorders, and a myriad of systemic conditions, such as autoimmune ailments, G-I disease and skin rashes that ultimately may lead to symptoms and signs that fulfill criteria for ASD.

There is a complicated life cycle involving a deer tick that is infected with an unusual bacterial organism. When a human is bitten, those critters create problems throughout the human body.

The variety of symptoms are due to effects in multiple organ systems, including skin, internal organs, muscles, and neurons throughout the body. Fatigue and various CNS complaints are the most obvious and serious signs. In patients with ASD, Lyme may appear as regression or progression of aggressive and disruptive behaviors.
Recent recognition of the havoc that this infection wreaks on the immune system points to signs and symptoms in a number of modern autoimmune maladies.

The most reliable diagnosis is made when a two step protocol is positive. Using the same sample, a positive or equivocal enzyme test will lead to testing for specific antibodies. According to one commercial laboratory, their PCR test has the advantages of correctly identifying Lyme in small measure, and in a variety of tissues. Costs are approximately $300 to $800.
Unless there is specific and adequate documentation, insurance companies balk at paying for even the less expensive labs.

According to the CDC, “Laboratory blood tests are helpful if used correctly and performed with validated methods. Laboratory tests are not recommended for patients who do not have symptoms typical of Lyme disease. Just as it is important to correctly diagnose Lyme disease when a patient has it, it is important to avoid misdiagnosis and treatment of Lyme disease when the true cause of the illness is something else.”

Patients treated with appropriate common oral, or intravenous antibiotics in the early stages of Lyme disease usually recover. There is a controversy concerning the proper diagnosis of patients who fail to respond after 6 months.
The CDC prefers “Post-treatment Lyme Disease Syndrome” to the term, ‘Chronic Lyme Disease‘. There is also “Conventional medicine and the NIH have taken a particularly strong position, researching various treatment protocols with little evidence of value. However, those who continue to suffer seek additional relief.

When faced with the enigmatic and vague diagnosis of ‘Spectrum Disorder’, parents sometimes seek a more specific, treatable disorder, such as Lyme. Clinicians should elicit a history of possible exposure to infected blacklegged ticks. Though ASD patients are as likely as anyone to become infected, symptoms that begin in infancy and very early childhood are much less likely due to Borrelia.

The history, a particular rash, and an unrelenting deterioration of neurologic function should alert the astute physician to perform the appropriate laboratory testing.

Importantly, the information we learn from studying and treating Lyme disease has many similarities to our better understanding of autism, as well.

Top 10 Reasons Why Autism Remains a Mystery

Sunday, October 18th, 2015

As regards the explosion of individuals who are diagnosed with autism, progress  seems agonizingly slow. It is the parents of affected children who are leading the way, and traditional explanations are, literally, the thinking of the last century. Why is information about prevention, cause and treatment so sparse?

Researchers are still debating the existence of an Autism Epidemic. Why should it matter whether there are more affected individuals because of reason “A” or reason “B”? That confusion holds up funding for studies, however.

Professionals continue to argue about the ‘when, how, and who’ of assigning an accurate diagnosis, which impedes trials seeking to explore prevention or treatment.

The likelihood of discovering a ‘magic bullet’ is low. There will probably need to be multiple treatments for the signs and symptoms documented in the DSM 5.0, depending on the myriad of causes and presentations.

There are no practical, accepted biomarkers for diagnosis. This is especially important in order to evaluate treatments(s) in an acceptably objective manner. This discovery alone could significantly advance research.

Surrounding the topic of ASD are highly charged issues, such as vaccinations, or complicated treatments, such as HBOT and chelation. Rather than stimulate further investigation, the situation appears to impede conventional researchers from documenting efficacy (or the lack thereof) in such controversial interventions.

Successful treatments of the various co-morbidites displayed by autistic patients, such as those offered at The Child Development Center of America, which combine biomedical and conventional protocols, are frequently viewed with skepticism, at best. These protocols deserve the attention of the medical establishment.

 We drink red G-2 and it comes out yellow.
Ever wonder where the red goes?
(hint… it’s not digested)

Proven associations, such as toxins, poisoned food and the environment, are not popular areas for discussion. Preventive measures receive little promotion or even acknowledgment. Cleaning up can be accomplished, at a cost. This involves not only public education and policy making, but personal choices, as well.

Antibiotics and steroids continue to be overprescribed by doctors, and are requested or too readily accepted by patients. There is a price to be paid for taking strong pharmaceuticals for every ‘cold’ or rash.

Research findings that implicate genetic variations imply feelings of futility about the plausibility of successful intervention. “If it’s genetic, we can’t fix it.” But, every day there are new discoveries about personalized medical treatments for autoimmune conditions or cancer, for example. Tiny chromosomal errors are not insurmountable.

Tools for early diagnosis and intervention, already proven successful, continue to elude the pediatrician’s black bag. Psychiatrists and neurologists, likewise, employ old-fashioned thinking and potent, risky medications that are barely and rarely effective.

In order to take autism research and treatment into the 21st century, organizations that are responsible for actually providing answers need to address these concerns and get serious about forming a unified and thoughtful approach to this medical puzzle.

Patient Testimonials about Biomedical Autism Treatments

Sunday, October 4th, 2015

Every so often, my beautiful and patient wife, Jackie, reminds me that the service websites that she searches contain letters and feedback from clients. “It’s not just advertising,” Jackie points out, “there are key comments that help me make my decision.”

In the spirit of helping other potential families decide about providing biomedical interventions for their non-typically developing children, here is some recent correspondence concerning the work at The Child Development Center of America. (names changed)

Letter from a teacher:
♥ …Also, just wanted to let you know-Billie is doing AMAZING! Therpist2 is wonderful with him. Therpist1 was lovely and worked well with Billie, however, Therpist2 has been getting him to do things that I did not see last year at all. He is trying to communicate more with me and with the other students. Billie is happy and engaged in learning when Therpist2 works with him. She is a lovely lady and so good with him. I am so pleased with what he is doing in class. Tomorrow we are going to show his science project during class – he did a great job on the assignment.
Therpist2 and I were brainstorming ideas for Billie to participate in the event at the end of the year….
Posting on Facebook:
♥ Doctors don’t know everything.
In February of 2011, the lead neurologist… told us that our oldest son (then 2.5 years old) would only continue to regress to the point where he’d become so aggressive we’d have to medicate him (which he showed no aggression at the time) and that he threw up every day bc he was autistic, cried all night bc he was autistic, and while he didn’t have a crystal ball, he said he’d probably eventually need to be institutionalized. He said he was 100% confident in his diagnosis.
Through reading and research, a second opinion and holistic approach guided by Dr Brian D Udell, extensive tests on food sensitivities and bacteria imbalances (due to antibiotic abuse from his previous pediatrician) a radical change in diet, faith and determination we reversed that diagnosis and restored his health.
♥ Fabio is responding well to the B12 shots. We are at 0.08ml three times a week for two weeks now and he is doing well. The better days are the days of the shot, then 2nd and 3rd day in between shots, he gets a little silly and extremely sensitive at the mouth area (he puts all his fingers in his mouth). Would it be ok to give him a shot every other day? I feel the effect of the shot wears out the days in between and as a result we see the silly behavior and sensitivity…
♥ Hi Dr. Udell, just wanted to show you an example of a good day for Bobby outside of all the movement you constantly see in your office… On a different (positive) note, see pic below at the School Award Assembly. Bobby walked up from the back of the cafeteria and up the ramp on to stage by himself, waited for all the other kids to get in position for pic and walked down. Huge difference from last year, he had someone with him the whole time. It was great to see all that independence growth from one year to the next!
♥ I just wanted to give you my perspective on what I am observing with Pat so you can understand why I am so adamant about increasing her dose back to the 3cc’s on Fluconazole.  She was a straight A student last year on this dose and is now struggling this school year.  I don’t know what it is about this medication but, it is magic for Pat and keeps her focused and on track.
Thanks for your help…
♥ Hi Dr. Udell. I wanted to update you on Darien’s behavior, constipation and my opinions on the Diflucan. We last saw you Sept 15.
On Sept 16, his behavior got him sent home from preschool for the day.
He was miserable Sept 17-19, constantly repeating “you didn’t say something?” and “nothing hurts?” And having tons of outbursts. The 19th was the worst. I took him to a first visit with his new play therapist and he was screaming and throwing things.
I started the Diflucan on Thursday the 18th. Stating Saturday the 20th, I have had my kid back again. He has been happy. The sensory stuff is still there but very toned down from last week. Overall, I have seen a HUGE improvement this week.  Huge…
♥ We are out of probiotics and have been for a week. We have noticed an increase in crying and pain with Robert. He also had loud farts with terrible smells.
♥ Jose is doing good. He pooped with the magnesium…
♥ I wanted to share this with you, it is about Henry and his horse riding therapy. He is doing a little better every day. Thank you for being part of our journey.
♥ Just some pics of Stan…he really is doing so much better with the htp. (5-hydroxy-tryptophan)
♥ Hello from Nassau! Sheena has been doing quite well since our visit. The Benefiber is WORKING !!!! She has a poop most days. It is formed but not hard, just pointy! … So she is doing well and we are grateful. Take care and see you in May.
♥ From a non-profit foundation “dedicated to providing …children in foster care with enriching activities, opportunities and experiences.” Here’s a great resource for all of us! “10 things every pediatrician should know about children in foster care”
♥ From Dr. Robert Melillo, author of Disconnected Kids, many tweets about “10 Things All Pediatricians Should Know About Autism” and “The Law, Antibiotics, and Autism“.
Comments about this blog:
♥ Everything is very open with a very clear clarification of the issues.
It was definitely informative. Your website is very useful.
♥ I like the valuable info you provide in your articles.
I will bookmark your blog and check again here frequently.
I am quite sure I will learn a lot of new stuff right here! Good luck for the next!
♥ I read a lot of interesting articles here. Probably you spend a lot of time writing.
Patient services:
♥ Hi Dr Udell, Karen & all your wonderful staff… for your help in the process of getting Maria switched to a bus that has AC/Heat capability… We are so thankful to God for good people like you guys that care and have helped us in the journey of advocacy for our little ones so that they can have all the resources available to be able to become functional & exceptional adults someday…I demanded that they read the letter & reviewed the case again that they realized their mistake & even apologize for their ignorance. Maria can finally resume classes & continue to enjoy learning her ABCs. Thank you again, very much, for ALL THE WONDERFUL WORK YOU DO!
♥… We are just so eager to get his little gut ready for the LDN and B12 shots……again thank you for everything!!  Our regards to the whole staff….they are awesome. You definitely give parents hope…by taking the time answer all of our questions and concerns….we are so thankful… are amazing!!

Website inclusions:
♥ GraciesAutism
♥ Jacob Velazquez, pianist

Perhaps, I’m just ‘preaching to the choir’. For years, reknowned ABA guru, Dr. Doreen Granpeesheh, has spoken about the improved outcome when parents combine ABA with biomedical techniques. Similarly, prominent researcher, Dr. Martha Herbert, has emphasized the whole body conditions that can be addressed in this manner.

By combining the time-tested improvements from ABA, OT, PT and S&L therapies, plus other emerging techniques, doctors can learn to successfully treat children diagnosed with ASD.

Notes from the Autism Education Summit

Sunday, September 27th, 2015
theo and me

September 26, 2015 Dr. Theoharides and me

In the beginning of the autism epidemic, conferences included practitioners and families interested in assisting patients in their journey toward recovery. As the information has become more extensive and complicated, the needs and expectations of various parties have spawned more specific meetings.

Tufts University professor, eminent autism researcher and program sponsor, Dr. T C Theoharides, invited me to lecture at this year’s Generation Rescue conference in Dallas. It was a chance to speak to, and with, a worldwide audience of over 700 parents whose children had an ASD diagnosis.

An Alternative Biomedical Approach to Autism Spectrum
A group of ~ 50 ‘newbies’ attended. The topic was chosen because I wished to simplify the issues and offer hope that, despite what the conventional doctors have declared, recovery is possible.

The take home messages were:
1. Traditional medicine only offers bandaids for very complicated signs and symptoms. When the only tool that a person has at hand is a hammer, everything looks like a nail. The usual medications are very powerful with lots of side effects, and provide little in the way of genuine relief.

2. There is more than one way to skin a cat. Many of the other ‘DAN’ practitioners seem to utilize more complicated and expensive protocols, not necessarily superior to the approach that I find most successful. A basic workup was offered to identify laboratory variances indicating less-than-optimal health. Addressing those areas and improving energy with techniques that are not difficult to understand or institute, usually leads to significant progress.

3. Ultimately, autism really IS ‘rocket science’. There are multiple causes and a variety of presentations that even experienced practitioners are hard-pressed to understand and treat. By understanding the basics, parents can lead a team of professionals to get their affected offspring on the right track towards an optimal outcome.

Other Lectures
For 3 days, there was a full roster of presentations covering cause, effects and treatments. In addition to Dr. Theoharides, world-renowned researchers and practitioners, such as Drs. Dan Rossignol, Richard Frye, Jerry Kartzinel, and Anju Usman, gave their learned and extensive points-of-view about ASD.

It is my belief that sometimes the lectures were too demanding. Although the audience was quite intelligent and knowledgable, they seemed to expect more in the way of treatment options for their child, than basic science.

Jenny Group

Ryan Blair, Jenny, Jodi Gomes, Ryan&Dawn Neufeld, Jacqueline&Chris Laurita

Jenny McCarthy
Cue the music, lights, cameras, video screens and action! To this crowd, the lady is a rock-star. She definitely delivered a great message, filled with personal anecdotes, humor, empathy and hope. A panel discussion followed, consisting of famous, and not-so-famous, warrior moms and dads. This was certainly one of the conference highlights.

When I announced on Facebook that I was attending this conference, one of my ‘followers’ wrote, “I think I’m going to unlike this page now,” presumably because of the ‘misguided’ position of Generation Rescue regarding the issue of vaccine injury.  Talk about the polarized world of autism diagnosis and treatment.

Bottom line – I would definitely recommend this yearly conference to parents who have the time and resources.

Sensory Processing Issues in Autism

Sunday, September 20th, 2015

What do parents mean when they express concern that their child “has sensory issues?” Even the DSM 5.0 now lists sensory processing differences as a core diagnostic symptom. A new study appeared last week showing that children on the spectrum actually respond to odors differently.

Researchers “measured the non-verbal non-task-dependent sniff response concurrent with pleasant and unpleasant odors in 36 children—18 with ASD and 18 matched typically developing (TD) controls. We found that whereas TD children generated a typical adult-like sniff response within 305 ms of odor onset, ASD children had a profoundly altered sniff response, sniffing equally regardless of odor valance.”

SmellParents may notice that an affected child smells everything and displays unconventional preferences. Some children do not even notice yucky odors, such as oral liposomal glutathione, or refuse multivitamin preparations that seem to smell just fine.

Previously, such information has provoked the proposal of a new syndrome, e.g., Visual Processing Disorder, Auditory Processing Disorder, etc. Is this Olfactory Processing disorder?

The Other Senses

Vision – parents notice eye stimming, such as staring at ceiling fans, spinning wheels or video screens. Temple Grandin has even highlighted a problem with fluorescent lights; that the cycling annoys those who are visually affected. Therapies targeting this sense have been shown to be effective.

As a clinician, visual ‘stimming’ needs to be distinguished from absence seizures, which have a vastly different cause, treatment, and potential downstream behavioral consequences.

Taste – Many parents report that their children are extremely picky eaters. Sometimes, the problem is with texture (such as crunchy, mushy, etc.) or temperature. Patients who experience speech apraxia often have difficulties with oro-motor functioning. Chewing may be a problem that necessitates blended foods and even more restriction in variety and nutritional value.

Affected toddlers who continue to drink a great deal of PediaSure® are often either allergic and/or addicted to that product because of a leaky gut, and weaning can be a slow, difficult process.

Hearing – Sometimes, affected children put their hands of over their ears as a ‘stimming’ behavior.  It can be communicating avoidance and so affected patients are literally putting their ‘head in the sand’. Often, is it due to certain frequencies (another child crying, a siren) or amplitude (vacuum cleaner, hand drier) that seem to set off a negative or aggressive behavior.

Other times, it may be due to processing, when the child doesn’t turn to voices or their name. Weakness in cognition can be another underlying cause for this difficulty. In any case, and similar to the other sensory conditions, auditory processing is definitely disordered.

TouchTouch – It appears that many affected patients have issues about being touched. Parents may report that they can only cut the hair or nails while the child is sleeping, or not at all. Some patients have complained that their skin feels like it’s on fire, while others do not seem to even notice a significant trauma. Repetitive hand washing, or tantrums from a wet shirt may be symptom of this issue, due to the child seeking input, rather than this being an obsessive-compulsive behavior.

Challenges in this sense include proprioception – the unconscious perception of movement and spatial orientation controlled by nerves within the body – as well. Some children will bounce for hours – on anything from the trampoline to the doctor’s couch – to address this issue. Temple Grandin even invented her own ‘hug machine‘ to alleviate her difficulties in this sensory realm.

These are issues indicative of crossed/missing/inadequate signaling in the CNS. Interventions that decrease inflammation and produce more efficient metabolism improve health. That leads to changes in these sensory signs of autism; as well as speech apraxia, repetitive behaviors or aggression.

Therapies directed at reducing the patients’ sensitivities to the various and specific system that is impaired can help. They can range from Occupational Therapy to Spinal manipulation.

How about our ‘sixth’ sense?” Google describes it as “a supposed intuitive faculty giving awareness not explicable in terms of normal perception.” It’s probably present in patients with ASD more than we think.

Medical Academy of Pediatric Special Needs Fall 2015 Meeting

Sunday, September 13th, 2015
Hyatt Grand Regency Orlando, FL

Hyatt Grand Regency
Orlando, FL

I am proud to report my continuing perfect attendance at the meetings, since the organization’s inception 4 years ago. These semiannual conferences represent one of the handful of valuable expositions, such as SFARI, to advance the science of practical approaches to modern developmental conditions.

There are multiple courses covering a variety of subjects, up to 8 hours per day for three days, presented by the most highly respected professionals in the field.

Day 1
Take home facts of the day:
√ Depending on the practitioner (and geographic practice location), costs (especially lab $) can vary widely.

√ In unusual or resistant cases, the treating practitioners should be concerned about the gut, fungus, toxins (especially metals), PANDAS (PANS, PITANDS), and Lyme Disease.

√ Genes regulating metabolism and function are affected by methylation that leads to downstream behaviors consistent with signs and symptoms of ASD. Folic acid metabolism, including the regulatory genes (MTHFR), methyl B12,and the resulting pathways were stressed as targets of possible intervention.

√ These really creepy-looking worms could help.
HDCThe therapy is used to reset the immune system. There is a great deal of research and literature to support the claim of immune system improvement. Cases were presented where patients made remarkable progress. It doesn’t help that the ‘critters’ are harvested from insects and the name is Hymenolepis diminuta cysticercoides, HDC therapy for short.
Most important about this discussion is the fact that Dr. Sid Baker, founder of biomedical interventions and respected researcher, clinician, teacher, father figure, and guru – is the strongest proponent of this new protocol. Dr. Sidney BakerIn fact, he has a little farm that produces high quality, fresh product, at a fair price. Even so, the general consensus from the peanut gallery at this time was that it is a ‘hard sell’, except perhaps for the most trusting and/or frustrated parents.

√ Also, Dr. B recommended liberal use of magnesium and essential oils as safe and effective interventions. The group was definitely more comfortable with that advice.

Day 2


A most interesting discussion ensued when Dr. Dan Rossignol, our fearless leader, presented a ‘typical’ case of a toddler diagnosed with autism. The various ways that the experienced practitioners handled this child – from workup to treatment interventions – came to the fore. The doctors were all addressing the same problems, but went about it with fairly disparate protocols. There is no one way, at this time, to ‘skin this cat’.

Dr. Baker presented his fascinating background as an innovator in the biomedical treatment of autism. He stressed yeast problems in the GI system, and went on to explain his journey into helminthic therapy, which has produced significant results in his practice.

Complicated cases filled out the day.

A touching tribute to Dr. Jeffrey Bradstreet was presented at the Friday evening reception. Those who worked with him told their stories of an innovator, pioneer, and caring doctor.

Day 3
Dr. Stephen Genuis, Ob-Gyn, University of Edmonton professor, and the author of Chemical Sensitivity: Pathophysiology or Pathopsychology? was first to present at the plenary session, covering toxicity. He is knowledgeable and passionate about poisons in the environment. His lectures provided new ammunition to address skepticism, and the rationale for strategies to detoxify.

The toxicants of Dr. Genuis’ focus were Perfluorinated Compounds (PFCs), which are ubiquitous in homes, on carpets, non-stick surfaces, and may cause metabolic disruptions with clinical effects; from cancer to headaches. After reviewing available and tested options, his conclusion was that the most effective treatment was periodic phlebotomy (removal of blood).

Supporting and related information was presented by Dr. Ken BockDr. David Quig, and Dr. Kenneth Stoller.

After 3 days of lectures, the bottom line is that the air, food and water is not safe, and the most exciting interventions are blood-letting, worms and special oils. It’s 2015?

A Real Autism Story

Monday, September 7th, 2015

My amazing journey in this practice of Special Needs Pediatric Medicine is about to take another interesting turn. Over a decade ago, I started researching, observing and testing children for ASD, then working at the county’s first autism clinic. It became clear that conventional medicine was not prepared for the present epidemic of developmental problems.

Karen Vossen

Karen Vossen

With the assistance of my wife, Jackie, and Karen Vossen, the mother of a child with autism, we started the Child Development Center of America. Karen, our Practice Administrator, is no ordinary mom of a special needs child (if there is such a person). She is knowledgeable and determined to help other families affected by developmental disabilities. Karen has pointed out that, in that pursuit, she is better able to assist in determining the best direction and outcome for her child.

JulianSeveral years ago, Karen suggested that the Clinic should train and hire a former patient who was attending college. Any reluctance on my part was met by Karen’s comment that, “If we can’t show that patients can join the workforce, what are we doing in this practice?”

Julian was first introduced to our office when he was already an older teen, who had been considerably affected by ASD in his earlier years. His parents had pursued biomedical intervention at a time when only a few saw the value, and it has produced significant positive results.

When you speak with this exceptional young man, who is working on his second collegiate degree, he explains that he “used to have autism.” And, he’s correct. Leftover issues from those earlier years are challenges in social interactions, which he manages just fine, and some sensory stuff, such as being a picky eater. He shines in his abilities to learn new tasks and stay focused on the job at hand.

The school that Karen’s son attends is associated with a not-for-profit organization to assist graduates beyond the age of 21. Karen contacted the principal to inquire about students who might be seeking some type of job training in a professional environment. She saw this as an opportunity for Julian to mentor. He was given the task to write a job description, which was reviewed and revised a few times, until Julian got it right.

Everyone was concerned – both moms, the administrator, Karen and myself. Everyone, that is, except the principle players. We were introduced to Steven, a twenty-one year old, bright individual who is shedding his earlier signs and symptoms of autism. He works hard at maintaining eye contact and social interactions, and is eager to get into the workplace.

Before the first meeting, Karen was explaining what tasks she thought Steven would need to learn in order to get started with work. Julian stated, “Wouldn’t it be better if we sat down and spoke for a while so that we get to understand each other?” And, the two of them had an amazing conversation that led to a successful day of work, camaraderie, and exchange of knowledge. Any supervisor would have been proud of how smooth-running that day went.

Karen has done an remarkable job. Both individuals adapted to the workplace situation just fine. They taught the rest of us about how to fit in as gentle, understanding, capable and happy staff members.

So far, these young men have given us as much as we have given them. Hopefully, there will be other businesses that choose to take advantage of this special work force. This experiment indicates that Karen’s son – and others with similar challenges – will be able to succeed, as well.

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Brian D. Udell MD
6974 Griffin Road
FL 33314
Office phone – 954-873-8413
Fax – 954-792-2424

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